Friday, September 30, 2011

DO YOU KNOW WHERE YOUR KIDS ARE WHEN THEY ARE AT SCHOOL?

"DO YOU KNOW WHERE YOUR KIDS ARE WHEN THEY ARE AT SCHOOL?"
This is not a rhetorical question!

So compelling, we had to share it in our Welcome Back to School social network event.

No school public, private, parochial should have a 'CLOSED-MOUTH' POLICY!  Students have rights!  Parents are the guardians of those rights. https://www.facebook.com/EnjoyHi5Autism
Know your rights.

This is not just for Parents of Students receiving Special Education services. https://www.facebook.com/babymiracle2005#!/event.php?eid=250810178286377 

Also, shared in our Autism Family social networks: https://www.facebook.com/EnjoyHi5Autism

and at http://familyenjoyinghi5autism.blogspot.com

All Parents need to KNOW WHERE THEIR KIDS ARE, even when they are at school.

No school public, private, parochial should have a 'CLOSED-MOUTH' POLICY!  Students have rights!  Parents are the guardians of those rights. https://www.facebook.com/EnjoyHi5Autism
Know your rights.

We are not paranoid,... we are attentive.
We are not annoying, ... we are involved.
We are not invisible...
WE ARE PARENTS.
WE ARE PARENTS of school-age children.

We appreciate the things that are right, good, and positive.
We seek to correct the things that are wrong, bad and negative.
Parents, get involved in your child's school.
Parents, be proactive about your child's education.

Let's Communicate and Collaborate as we Educate.

Read this Editorial:

Editorial: Parental exclusion
It's 8:00 a.m. on a weekday. Do you know where your child is?
http://discussions.dailypress.com/20/hrnews/dp-edt-hamptonschools-editorial-0928-20110928/10


References & Resources

http://www.ed.gov
@used.gov
http://www.used.gov
http://www..facebook.com/ED.gov




Parent Training & Information Resources

Wrightslaw Directory of Parent Training Information Centers - Yellow ...

Parent Training & Information Center (PTI): Parent centers serve families of children and young adults from birth to age 22 with all disabilities: physical, cognitive, ...


Parent Center Network
The ALLIANCE National Parent Technical Assistance Center (NPTAC) provides Parent Centers, Parent Training and Information Centers (PTIs) and Community ...




http://www.advocacyla.org/
@advocacyla
http://www.twitter.com/advocacyla




http://www.justice.gov/














Thursday, September 29, 2011

tweet with Twellow for Special Needs

'tweet with Twellow for Specials Need'

Twellow Is Now Accepting Category Suggestions Again!
Hi5!  We are the family that successfully advocated for Twellow (Twitter online yellowpages) to establish 5 new Raising Awareness Categories(10.11.10): Developmental Disabilities, Developmental Delays, Learning Disabilities, Neurological Disorders, Sensory Integration Disorder and Sensory Processing Disorder.
Thanks Twellow!  Our Twellowers subcategories are still growing.
Join us in celebrating a 1 year anniversary!  In October, we will highlight these Special Needs businesses, organizations and groups that have joined these 5 Twellow social networks.

Our 2 Twitter accounts (https://twitter.com/#!/babymiracle2005 and http://www.twitter.com/#!/enjoyhi5autism) are Registered with Twellow. 
Look for our icons as:

KBJ Cosse' (@babymiracle2005)
http://www.twellow.com/babymiracle2005



KBJCosse' @enjoyhi5autism
http://www.twellow.com/EnjoyHi5Autism






Join these 5 'Raising Awareness' social networks.
Let us know if your category suggestion is approved.
You can sign in with your Facebook account.

Each Twellow Category posts number of listings and each Subcategory posts number of Users; and each Users listing posts how many Followers.

That's hundreds--thousands-- (millions, if you are a linked with a Kardashian or Lady Gaga) of people viewing your business, mission, events, fundraiser! 
Follow our 5 Special Needs categories and Support our  followers, too.

KBJ Cosse' (@babymiracle2005 )has 71 Followers in:
Developmental Disabilities (209 primary listings)
www.twellow.com/categories/developmental_disabilities/page/6


KBJCosse' (@EnjoyHi5Autism) has 268 Followers in:
Learning Disabilities (208 primary listings)
http://www.twellow.com/categories/learning_disabilities/page/3



KBJ Cosse' (@babymiracle2005) has 71 Followers in:
Developmental Delays (28 primary listings)
http://www.twellow.com/categories/developmental_delays


KBJCosse' (@EnjoyHi5Autism) has 208 Followers in:
Sensory Processing Disorder(10 main listings)
www.twellow.com/categories/sensory_processing_disorder


Sensory Integration Disorder
www.twellow.com/categories/sensory_integration_disorder


ENJOY!


References & Resources

Twellow  has numerous Twellowers who are millions of Users of thousands of SubCatergories in the main Categories of their Index!
Entertainment, Government, Society & Culture, News & Media, Recreation & Sports, Education, Health, Computers, Technology, Family, Marketing, Food

- If you cannot find your business' category on Twellow's Category Page, there are three ways that you can suggest it to us:
• Post your category suggestion on our Twellow Facebook Page.
• Tweet your category suggestion to @TwellowSupport.
• Send your category suggestion via e-mail to support@twellow.com.

Twellow: The People Search That Twitter Should’ve Built

Twellow is a great new search tool and directory for discovering Twitter users that could fundamentally change the way people use the microblogging service. mashable.com/2008/06/24/twellow

Connect with your TwellowHood!
Use the map above to locate Twitter people in your neighborhood who you can connect with.

Saturday, September 24, 2011

WWDOP!

'WWDOP!" Worldwide Day of Play September 24, 2011 Hi5! Our family is bowling today. Bowling is one of Joshua's favorite activities. He enjoys other sports, too. But, bowling seems to be his favorite! He bowls inside, outside, at the bowling alley, on the game system. He likes the colorful balls. First, he enjoys counting the numbers on the lanes. He understands that you must bowl in your lane. Sometimes, he still wants to run up the lane to see where the ball is going when it hits a strike. Our son can bowl for an hour or an entire game. Bowling is fun! HOWiPLAY - In participation with AbiltyPath.org, Worldwide Day of Play is provided ideas for enjoyable fun for kids with special needs. Including bowling, we shared are a few of our 'HOWiPLAY' suggestions: "Enjoying the Hi-5s of Autism - A Family Experience" Also, today is
Honor Eunice Kennedy Shriver Day! Enjoy HOWiPLAY #fun #WWDOP Worldwide Day of #Play ! @NickelodeonTV @SpecialOlympics @abilitypath @SpecialPlaydate @spdbn via EnjoyHi5AutismKBJCosse' Get outside today and enjoy the Autumn season. You can participate in Worldwide Day of Play in your community. Many are traveling to Washington,DC for WWDOP 2011. Enjoy Live Performances and Sports Competitions! Nickelodeon stars and other A-List performers and athletes will be at WWDOP! WWDOP - Celebrate on the Ellipse in President's Park with a day of family-friendly activities hosted by the best in professional and youth sports, health and wellness and community partners. The stars from iCarly, Victorious, Big Time Rush, Bucket & Skinner's Epic Adventures, Supah Ninjas, True Jackson, VP and Family BrainSurge will all be there including: Victoria Justice, Keke Palmer, Nathan Kress, Jennette McCurdy and MORE! Plus Big Time Rush and the Fresh Beat Band will perform LIVE from the event!
NickelodeonTVNickelodeon Today our channels go dark from 12pm–3pm for #WorldwideDayofPlay. Get active & tell us how you play. #IPlayBecause http://at.nick.com/nyxChO Can't make it over to DC? No worries, catch all of our #WorldwideDayofPlay coverage at http://at.nick.com/nd777p :) Thanks Nickelodeon, The big Help and Worldwide Day of Play Partners!
; and AbilityPath ENJOY! References & Resources
Nickelodeon Wondering who's going to be at our Worldwide Day of Play event over in DC tomorrow? Well, besides tons of Nick stars, we'll also be having guest appearances by Carmelo Anthony, Dwayne Wade, and LeBron James! Worldwide Day of Play 2011 Live from Washington, DC Source: on.nick.com Participate in a PALA Challenge Build a healthy lifestyle! All you have to do to complete the PALA Challenge is be active 60 minutes per day, 5 days a week, for 6 out of 8 weeks! Brought to you by the President's Council on Fitness, Sports & Nutrition.

Friday, September 23, 2011

Autism & Digestion

Autism & the Digestion We have previously shared about our son's picky-eating and how his food preferences affect his digestive system. Crunchy, dry, bland, not mushy, not soft, not cold, not hot are his choices when selecting to eat for any meal---at home or in restaurants. Does your child on the Autism Spectrum have digestion issues? What do you do to resolve them? Have you considered medicine, a pyschologist, massages, yoga or surgery? What has your doctor prescribed, if anything? Do you think it is all pscyho-somatic? Do you know what the DSM IV and upcoming V position is on this issue? Here is an article about ... News> Children with Autism and Gastrointestinal Symptoms Have Altered Digestive Genes Researchers at the Center for Infection and Immunity (CII) at Columbia University's Mailman School of Public Health and at the Harvard Medical School report that children with autism and gastrointestinal disturbances have altered expression of genes involved in digestion. These variations may contribute to changes in the types of bacteria in their intestines. Many children with autism have gastrointestinal problems that can complicate clinical management and contribute to behavioral disturbances. In some children, special diets and antibiotics have been associated with improvements in social, cognitive and gastrointestinal function. The investigators found that children diagnosed with autism and gastrointestinal disturbances have abnormalities in levels of genes for enzymes that break down sugars and for molecules that transport them from the lumen of the intestine into the blood. These variations were also associated with changes in the bacterial composition of the intestine. September 22, 2011 Children with Autism and Gastrointestinal Symptoms Have Altered Digestive Genes By Autism Society

Sunday, September 11, 2011

explaining 9/11






'explaining 9/11'





singing a favorite Sunbeam Class Sunday School song..."God's Banner Over Me Is Love."



Our 6 year old son understands more with videos and social stories. How are you explaining 9/11 ? Kbj Cosse' recommends a link.



Kbj Cosse' recommends a link.


Sept. 11: Ground Zero workers found a tree amidst the debris, and Richie Cabo helped nurse that tree back to life. He says the tree was “just like us – we just keep growing. But it wasn’t easy.”


· · · about an hour ago









    In 2010, the W.K. Kellogg Foundation launched the America Healing initiative, to support programs that promote racial healing and address racial inequity, with the goal to ensure that all children in America have an equitable and promising future.
    Page: ‎6,619 people like this.
    EnjoyHi5Autism Watching a msnbc.com video: Last woman rescued: ‘I can’t believe I’m here’ - http://on.msnbc.com/mTFubW via @msnbc 9/11 Babies on Dads: 'I Never Met Him But I Know I Love Him' References & Resources Where I Was: An Interactive Map of 9/11 Memory www.nytimes.com Share your memories of where you were on Sept. 11, 2001, and how you felt about the events of that day. EnjoyHi5!Autism Enjoying the Hi-5s of Autism-A Family Experience Enjoying Autism in Cinema My Name Is Khan - Official Page

    Saturday, September 3, 2011

    through the storm

    Hi5!

    'through the storm'
      Tropical Storm....
    steady deluge of rain...
    power outages, flooding, wind damage!


    stock up on non-perishables and snacks...
    ate most of perishable food in fridge..
    stocked up on batteries, H2O, phone charging devices, toilet paper, First Aid Supplies, blankets

    stuck inside...

    Thank goodness for e-gadgets, smartphones, e-tablets, computers, cards, board games

    Thank goodness for social networks:  Facebook, Twitter, orkut, Yahoo, Blogger,Scribd, MySpace, Last.fm, digg, reddit, hi5, MyIdol Community-American Idol
    Fishville, Solitaire, Scrabble, Farmville, Inclusion Tools, Frontierville, TravBuddy.com, Doorbell, Status Shuffle, Fun Games
    Crackle, YouTube, Netflix, Redbox, Hulu, Windows Media Center, iTunes

    https://apps.facebook.com/fishville/


    Thank goodness for CreateTV!
    Watching CreateTV is one of our son's favorite things to do EVERYDAY!
    This Public Broadcasting Station offers Arts & Crafts, Cooking and Traveling.
    These topics encompass most of what our son enjoys about life.
    Our 6 year old enjoys:


    Here are some of the show's he will enjoy as we hopefully will go 'through the storm' and come out on dry land:

    CREATE TV
    12:30 AM

    Lidia's Italy
    Apples: Salad, Soup, Dessert• Episode #423
    Join Lidia as she travels to Trentino Alto Adige, a beautiful region known for hiking, skiing, and apple picking! In this episode, Lidia makes three wonderful recipes all containing fresh apples. First she begins with an apple and bean soup. Next, joined by her daughter Tanya, she creates a refreshing country salad, with apples and potatoes. And for dessert, it's bread pudding with chunks of apples and apricots.

    Thursday, September 1, 2011

    Rest from your LABOR...

    'Rest from your LABOR...'

    Hi5!

    Some restful things to do during the long Labor Day weekend. 


    Remember, the kids are home from school!

    Affording a Public Education

    Hi5!
    'Affording a Public Education'
    We shared on Welcome Back to School social networking event :  'PRAYING & Hoping for a Good, Productive and Enjoyable School Year :-)

    We are sharing our academic life while learning as a family on the Autism Spectrum. 

    We want all Students to be properly educated.
    What is the going rate for a world-class public education (developed vs. developing or underdeveloped countries)?  


    Beyond assisting financially with our son's public education via taxes, school fundraisers, and donations, can't imagine how much income we would need to afford his academic needs and extracurricular pursuits.  How much $ is allocated per Student is not necessariily reflective of what is actually needed:  it's an 'average' based on $ federal/state/district and academic requirement.  Private services fees are different from community-based and school-based services. 


    Anyway, since Feb. 2009, our son has attended a public school where he participates in a General Education and receives Special Education Services according to his Individualized Education Plan secured by the IDEA 2004 reauthorized federal law. 
    His school system promulgates the Rehabilititation Act1973/Section504 mandate of a Free, Appropriate and Public Education .
    He learns in an Inclusive and Least Restrictive Environment with Accommodations and Modifications, as needed. Our son's 'regular' education is reinforced/supplemented by therapies/programs: O.T., A.P.E., A.T., Speech/Language, Sensory Integration, Play And Learning Social Skills(P.A.L.S. - based on Model Me Kids and the Second Step Committee for Children Curriculum). 
    Our son enjoys 2 enrichment classes, library, enrichment activities. Lastly, his school is multicultural, incorporates RtI, People First Language, and Universal Design for Learning concepts; is trained in PBIS/SWPBIS/PBS; and educates Staff/Faculty/Students/Teachers/Parents about BP-BULLYING PREVENTION. 
    HOW MUCH DOES ALL OF THIS COSTS OUT OF POCKET!?! 


    In closing, we know how much his medical and clinical needs cost.  As it relates to the Plan International USA, don't think we could afford to educate our son if we lived in a 'developing country'.  Our son might be included in the 11 million primary school age children who ae not enrolled in school because public school is NOT free. We aren't billionaires,..., AND WE DON'T LIVE IN POVERTY! 


    [Many references on Facebook and other social networks:
    http://nces.ed.gov ; http://www.ED.gov
    Specialneeds Almanac ;
    http://www.ldonline.org/features/idea2004 ;
    AHEAD.org ;
    http://www.fape.org/pubs/FAPE-27.pdf ,
    www2.ed.gov/about/offices/list/ocr/docs/edlite-FAPE504.html;
    Office of Special Education & Rehabilitative Services/Office of Special Education Programs- http://www2.ed.gov/about/offices/list/osers/osep/index.html ;
    http://CAST.org/ ; http://www.parentcenternetwork.org/allregions.html
    National Bulling Prevention Month- http://PACER.org/bullying ; https://www.facebook.com/EndTheWord ;
    cyberbullying.us ;
    wrightslaw.com Special Education Advisor http://www.yellowpagesforkids.com/

    References & Resources:
    Education info. is embedded in this blog, refer to lists, and labels for each article.



    www.planusa.org
    Plan is a nonprofit organization working in 48 developing countries that has been helping children since 1937. You can make a donation or sponsor a child through Plan's child sponsorship program today and join more than a million people who are helping to improve the lives of children.

    Welcome Back to School social networking event : 'PRAYING & Hoping for a Good, Productive and Enjoyable School Year :-)