'Fragile X & ASD'
Patricia Kisimore and I met during our 6 months of training with the Louisiana Partners in Policymaking , an initiative of the LA Developmental Disabilities Council. On June 19, 2010, we were honored to graduate with over 20 other Self-Advocates, Parents, advocates and families representing the developmental disabilities regions in our states. As you see, 'Patty KK' is still advocating for her son, our son and others with developmental disabilities. I am proud to recognize her 'uniquely different' family, legislative collaboration, fundraising strategies and media debut on Fragile X Awareness Day 2011! ENJOY!Note: As you may recall, I shared that 'Enjoying The Hi-5s of Autism-A Family Experience' launched as my Partners in Policymaking Graduate Project in June 2010. This family blog is a precursor to 'Celebrating the ADA 20th Anniversary - the Social Networking Way'. That social networking Facebook proclamation honored the signing of the Americans with Disabilities Act of 1991. Less than a year post-graduation, I was appointed by Louisiana's Governor Bobby Jindal, confirmed by the Louisiana Senate and selected by the Louisiana Developmental Disabilities Council to serve as a Parent Advocate for the LADDC . Partners in Policymaking (Louisiana) is accepting applications for the Class of 2012.
References & Resources:
Males and females with fragile X syndrome may have anxiety and hyperactive behavior such as fidgeting, excessive physical movements, or impulsive actions. They may also have attention deficit disorder, which includes an impaired ability to maintain attention and difficulty focusing on specific tasks. About one-third of males with fragile X syndrome also have autism or autistic-like behavior that affects communication and social interaction. Seizures occur in about 15 percent of males and about 5 percent of females with fragile X syndrome.
- FRAXA Syndrome
- fra(X) syndrome
- Marker X syndrome
- Martin-Bell Syndrome
- X-linked mental retardation and macroorchidism