Hi5!
'Fragile X & ASD'
{Just click on the highlighted words to go to those links.}
Kbj Cosse'
Fragile X Awareness Day | NBC33 | WVLA about an hour ago
I dont want people to feel sorry for us, or panic just because their child has autism and go demand the test from all the doctors in the area (wait, that part may not be bad!) but I guess if any of this helps just one family, then its worth it, right?
Kbj Cosse' Hi5! Patty K K! Thanks for posting y'alls interview.
...I would like to thank my Congressman Bill Cassidy for supporting our cause and being a member of the Fragile X Caucus! and big shout out to our champion Gregg Harper!!
...I would like to thank my Congressman Bill Cassidy for supporting our cause and being a member of the Fragile X Caucus! and big shout out to our champion Gregg Harper!!
Let's share Fragile X Awareness Day and Patricia Kisamore's Awareness Day video and support her Fragile X Awareness Day/Pampered Chef Fundraiser
Let's share Fragile X Awareness Day and Patricia Kisamore's Awareness Day video and support her Fragile X Awareness Day/Pampered Chef Fundraiser
Patricia Kisimore and I met during our 6 months of training with the Louisiana Partners in Policymaking , an initiative of the LA Developmental Disabilities Council. On June 19, 2010, we were honored to graduate with over 20 other Self-Advocates, Parents, advocates and families representing the developmental disabilities regions in our states. As you see, 'Patty KK' is still advocating for her son, our son and others with developmental disabilities. I am proud to recognize her 'uniquely different' family, legislative collaboration, fundraising strategies and media debut on Fragile X Awareness Day 2011! ENJOY!
Note: As you may recall, I shared that 'Enjoying The Hi-5s of Autism-A Family Experience' launched as my Partners in Policymaking Graduate Project in June 2010. This family blog is a precursor to 'Celebrating the ADA 20th Anniversary - the Social Networking Way'. That social networking Facebook proclamation honored the signing of the Americans with Disabilities Act of 1991. Less than a year post-graduation, I was appointed by Louisiana's Governor Bobby Jindal, confirmed by the Louisiana Senate and selected by the Louisiana Developmental Disabilities Council to serve as a Parent Advocate for the LADDC . Partners in Policymaking (Louisiana) is accepting applications for the Class of 2012.References & Resources:
What is fragile X syndrome?
Fragile X syndrome is a genetic condition that causes a range of developmental problems including learning disabilities and cognitive impairment. Usually, males are more severely affected by this disorder than females.
Males and females with fragile X syndrome may have anxiety and hyperactive behavior such as fidgeting, excessive physical movements, or impulsive actions. They may also have attention deficit disorder, which includes an impaired ability to maintain attention and difficulty focusing on specific tasks. About one-third of males with fragile X syndrome also have autism or autistic-like behavior that affects communication and social interaction. Seizures occur in about 15 percent of males and about 5 percent of females with fragile X syndrome.
Males and females with fragile X syndrome may have anxiety and hyperactive behavior such as fidgeting, excessive physical movements, or impulsive actions. They may also have attention deficit disorder, which includes an impaired ability to maintain attention and difficulty focusing on specific tasks. About one-third of males with fragile X syndrome also have autism or autistic-like behavior that affects communication and social interaction. Seizures occur in about 15 percent of males and about 5 percent of females with fragile X syndrome.
What other names do people use for fragile X syndrome?
- FRAXA Syndrome
- fra(X) syndrome
- FXS
- Marker X syndrome
- Martin-Bell Syndrome
- X-linked mental retardation and macroorchidism
For more information about naming genetic conditions, see the Genetics Home Reference Condition Naming Guidelines and How are genetic conditions and genes named? in the Handbook.
We envision a system of services and supports in Louisiana which enable individuals with developmental disabilities to exercise self-determination, be independent, productive and integrated and included in all facets of community life.
Building The Next Generation of Leaders
Partners in Policymaking is a national leadership training program for people with developmental disabilities and parents of young children with developmental disabilities.
Learn more about Social Networking and Advocacy...
"Celebrating the ADA 20th Anniversary - the Social Networking Way ...
www.facebook.com/note.php?note_id=134895476552223... -
Aug 6, 2010 – ... with Disabilities website, entitled "Celebrating the ADA 20th Anniversary - the Social Networking Way" : http://www.aapd.com/site/c. ..."Celebrating the ADA 20th Anniversary - the Social Networking Way ...
www.facebook.com/event.php?eid=141387949221728 -
Join America in 'Celebrating the ADA 20th Anniversary - the Social ...
Countdown to the 20th Anniversary of the ADA: Day 12 - YES We Can ...
blog.govdelivery.com/.../countdown-to-the-20th-anniversary-of-the... -
Jul 14, 2010 – A. Imparato and so many Americans in Celebrating ADA's 20th Anniversary I have posted my event on my Facebook page - "Celebrating the ADA 20th Anniversary -The Social Networking Way" by KBJCosse'. ...
www.autismkey.com/autism-advocates-tap-social-media-sites-to-pro... -
5 posts - 2 authors - Last post: May 15
Initially, we started Facebook's 'Celebrating the 20th Anniversary of the ADA-
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